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Patient Advocacy

The Boring Patient. R. David Lankes 2014. This book is not about cancer. It is about how David Lankes, professor and father, responded to being diagnosed, living with, and being treated for cancer. That is an important distinction because cancer is not funny. Cancer sucks. Cancer does not teach, cancer does not preach, cancer does not comfort, or inspire, or inform. Cancer kills. How one responds to cancer? This is a completely different matter.

(Call No. Med Staff 113-102)

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Advancing health literacy: Framework for understanding and action. Christina Zarcadoolas, Andres F. Pleasant, and, David S. Greer. Jossey-Bass; 2006.  Health and health literacy are powerfully linked, and every health communication can be an opportunity to foster both.  Health literacy is now recognized as a major public health issue.  The purpose of this book is to provide health professionals, communicators, and students with the insights and the tools they will need to communicate effectively in a rapidly evolving and increasingly complex environment.

(Call No. Pt Rights 131-018)

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Health literacy from A to Z: Practical ways to communicate your health message. Helen Osborne. Jones & Bartlett Learning; 2013.  Taken from the Forward by Jim Conway, Adjunct Faculty, Harvard School of Public Health, Senior Fellow, Institute for Healthcare Improvement, "Helen's book is an exceptional read, tool, reference, encyclopedia, and just-in-time guide for staff at the front line, healthcare executives, and policy analysts."

(Call No. Pt Rights 131-019)

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Building health literate organizations: Guidebook to achieving organizational change. Mary Ann Abrams, et al. UnityPoint Health; 2014.  There are many tools to help you engage in organizational change to become a health literate health care organization.  The challenge is to use them effectively and reliably, yet choose your own path - one that works for your organization.  This guidebook includes background, resources, examples, and lessons learned to help you build a health literate health care organization.

(Call No. Pt Rights 131-020)

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In the name of the patient: Patient advocate role in a healthcare facility. Beryl Institute; 2014. The book reinforces that patient advocacy is a foundational component in the history and actions of the patient experience movement.

(Call No. Pt Rights 131-016)

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Physician perspectives on patient experience. L. Shankar, J. Wolf. Beryl Institute; 2014. The paper incorporates a number of views which will lead readers to some common considerations on how physicians can be contributors to and leaders in the patient experience process.

(Call No. Phys 539-068)

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The other end of the stethoscope: 33 insights for excellent patient care. Marcus Engel. Ella Press; 2006. After being blinded and suffering catastrophic injuries, author Marcus Engel, witnessed health care from the other end of the stethoscope.  The author's insights will give health care providers new and essential strategies to rediscover the magic and compassion between caregiver and patient.

(Call No. Pt Rights 131-017)

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AMA cultural competence compendium. American Medical Association; 2000. This book aids physicians in examining each patient's cultural background so that appropriate, respectful, patient-centered care is always provided. It consists of an annotated list of resources such as policies, publications, and websites regarding health care and communication issues confronting people from underrepresented and underserved racial, ethnic, and socioeconomic groups and those with physical and mental illnesses or disabilities.

(Call No. Pub Rel 579-009)

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Transfusion alternatives – documentary series. Watch Tower Bible and Tract Society of Pennsylvania; 2004. Physicians around the world are now successfully treating patients who desire to have medical care without blood transfusions. With the help of many recognized experts, this three-video series explores the medical, legal, and ethical principles surrounding transfusion alternatives.

(Call No. DVD 002-519)

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Health literacy – Prescription to end confusion. Lynn Nielsen-Bohlman et al. National Academies Press; 2004. This book recommends actions to promote a health literate society. Although casual relationships between limited health literacy and health outcomes are not yet established, cumulative and consistent findings suggest such a casual connection.

(Call No. Pt Rights 131-010)

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Caring for patients from different cultures: Third edition. Geri-Ann Galanti. University of Pennsylvania Press; 2004. 'Cultural competence' has become a buzz word, and training in the area is becoming mandated. The author's explicit focus in this third edition is to help health care professionals achieve greater cultural competence through learning about, understanding and respecting the values and beliefs of others and being able to apply the knowledge to provide better care for patients of other ethnic backgrounds.

(Call No. Pt Rights 131-011 2004)

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YOU the smart patient: An insider’s handbook for getting the best treatment. Michael F. Roizen and Mehmet C. Oz. Free Press; 2006. The authors have employed their poetic license to bring alive important points about the healthcare system to help patients get the best treatment. Doody's Book Review, the premier evaluator of health sciences books, has given a three star review to JCR's co-publication with the best-selling authors

(Call No. Pt Rights 131-015)

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Providing culturally and linguistically competent health care. Joint Commission Resources; 2006. This publication explores issues of cultural and linguistic competence and their implications on the provision of effective care, treatment, and services for all health care settings.

(Call No. Hlth Care Adm 310-094)

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Satisfied patient: A guide to preventing malpractice claims by providing excellent customer service, 2nd edition. Saxton, James W. HCPro, Inc.; 2007. The second edition is a resource that every modern physician needs. Written by an experienced healthcare attorney, this fully updated book illustrates how focusing on patient satisfaction can better your organization, reduce the potential of professional liability claim, and significantly affect the outcome of that claim if initiated. Learn how to increase patient satisfaction and reduce claims by incorporating five-star customer service principles into caregiving, encouraging patients to take responsibility for their care, and by taking a few extra seconds to create legible, concise documentation.

(Call No. Pub Rel 579-010 2007)

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Chasing zero – winning the war on healthcare harm. Discovery Channel; 2009. The program is hosted and narrated by Dennis Quaid. Following the near-death experience of his infant twins resulting from a medication error, he has initiated a call to action for healthcare leaders to invest in patient safety. The documentary reveals a series of short 'arc to action' stories. Each story opens with a challenge and then tells how caregivers overcome such challenges with practices that everyone can adopt. The objective is to inspire the audience to act in their own communities or at their own hospitals. The messages reinforce supporting adoption of the NQF-Endorsed Safe Practices for Better Healthcare. This inspirational documentary was made possible by a grant from CareFusion, AORN, and TMIT.

(Call No. DVD 002-545)

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Cultural competency: Just good healthcare. Du Pont Sustainable Solutions; 2010. What is Cultural Competency? In simple terms, it's medicine at its best: patient-centered care. Healthcare providers who are sensitive to the cultural and religious beliefs of the communities they serve, particularly surrounding health and illness, provide patient-centered care. It's considered 'cultural competency' and it's a regulation in hospitals around the country. This program is designed to address the delicate nature of cultural competencym train healthcare professionals about patient assessment tools that allow employees to explain illnesses and treatment, identify healing, negotiate treatment, intervene and collaborate with patient family members. It includes realistic healthcare scenarios representing many different cultures and beliefs, with additional content and insights to enhance the comprehension and retention of this critical information.

(Call No. DVD 002-554)

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Infusing CARE in the HealthCARE Experience – Training DVD. American Hospital Association; 2011. This product was created by Patient Advocates - professionals who are dedicated to a positive healthcare experience for patients and families.

(Call No. DVD 002-557)

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